Specialist data
Disease-specific clinical information captured in a structured form.
Focused software
for rare-disease care.
A specialist healthcare application supporting structured management and follow-up of patients with Fabry disease.
FabryCare / FACESRare diseaseSloveniaApplication development
CustomerGeneral Hospital Slovenj Gradec
CountrySlovenia
DomainRare disease · Fabry disease · longitudinal care
Lucis roleApplication development
The context
Rare disease needs specialist data.
Rare-disease care can require highly specialized clinical information, long-term patient follow-up, multidisciplinary care data and structured specialist documentation.
General-purpose systems rarely capture that detail, which is why focused tools matter in niche clinical domains.
Lucis contribution
A dedicated tool built with the clinical team.
Lucis developed software supporting structured Fabry-disease patient management in cooperation with the specialist clinical environment.
Longitudinal record
Patient history that can be followed over many years of care.
Documentation and follow-up
Consistent specialist documentation and follow-up workflows.
How the work fits together
From specialist visit to long-term follow-up.
The application organizes the patient record around the course of the disease. The diagram describes the clinical workflow.
01Assess
Capture disease-specific clinical data.
02Document
Record structured specialist documentation.
03Review
See the longitudinal patient history.
04Follow up
Plan and track continued care.
The responsibility
Rare diseases are followed for a lifetime, so the record has to stay structured, consistent and usable.
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